Make Pain a Thing of the Past – rare diseases – Physician Partners of America

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PPOA Treatment Can Ease Back Pain from This Rare Disorder

Arachnoiditis has nothing to do with spiders, but its symptoms can be pretty scary. Difficult to diagnose and difficult to treat, this rare nerve inflammation can trigger excruciating lower back and leg pain. It is a progressive and debilitating disorder that can cause some people to become bedridden and unable to work.

What is Arachnoiditis?

The condition affects only about 11,000 people a year, according to the National Organization for Rare Disorders.  It is almost always caused by a medical procedure.

It starts in the web-like arachnoid membrane that protects the spine and brain. When the membrane becomes inflamed, it can cause the nerves to fuse together. This causes them to malfunction. The resulting scar tissue can press against the nerve roots that exit the spine, causing severe pain.

Arachnoiditis pain usually affects the lower back and legs and causes a variety of sensations.

  • Tingling or “creepy-crawly” feelings on the skin
  • Muscle cramps, twitching and spasms
  • Shooting, “electric shock” pain
  • Bowel, bladder and sexual problems

“It causes a number of symptoms and they can vary in the same individual,” said Dr. Abraham Rivera, chief medical officer of Physician Partners of America.

What Causes Arachnoiditis?

This condition has many causes. The majority are related to contaminants that accidentally get into the dura – the fluid surrounding the spinal column – during certain medical procedures like epidurals and spinal taps.  These contaminants include preservatives or impurities. Long ago, oil-based chemicals used in contrast dye tests, like myelograms, were blamed for some cases of arachnoiditis.

How is Arachnoiditis Diagnosed?

This disorder is so uncommon that most doctors rarely see it in their practices, making detection difficult. Fortunately, Physician Partners of America Pain Relief Group has the expertise to identify it and attempt to treat the pain.

The most helpful diagnostic tests are MRIs (magnetic resonance imaging) and CAT scans (computerized axial tomography). Another test, an EMG (electromyogram), uses electrical impulses to determine the extent of damage to nerve roots. PPOA specialists can perform this test.

What is the Best Arachnoiditis Treatment?

Unfortunately, there is no cure for this condition, but Physician Partners of America offers the hope of relief from arachnoiditis pain.   “One common treatment is oral pain medication, but it doesn’t tend to work well,” says Dr. Rivera. “The pain can be managed for some people with a spinal cord stimulator.”

Spinal cord stimulators are minimally implantable devices that send electrical signals to targeted areas of the spinal cord to treat specific pain conditions. It is a minimally invasive procedure that PPOA physicians perform routinely.

Stems cell therapy for arachnoiditis is only in the experimental stage and has not yet been proven helpful.

“We are keeping our eye on the latest research to treat this debilitating condition,” says Dr. Rivera. “Not every current treatment works for everyone, but we make every effort to treat the pain and help sufferers lead a more normal life.”

 

 

 

 

Interviewer: In some cases, widespread muscle and joint pain can point to fibromyalgia. It will not only affect physical pain, but it can involve mental pain as well. Dr. Rudy Gari from Florida Pain Relief Group joins us now, with some help. Dr. Gari, great to have you here.

Dr. Gari: Thanks a lot.

Interviewer: Let’s talk about what causes fibromyalgia in the first place.

Dr. Gari: Sure. So fibromyalgia, we’re not really sure the exact causes of it, but here’s what we do know. So if you break down the word fibromyalgia, fibro means fibrous, and myalgia means muscle, inflammation of the muscles. What we know is that it tends to affect predominantly women, we’re not really sure why it does, but it does. And it involves a process whereby your fibrous tissues and your muscles combine to cause inflammation, and it can be very debilitating in a lot of people. There’s different things that could be done, we know what can help. For example, we know what makes it worse is usually stress, tension, so the treatment for that is relaxation and techniques to lower that threshold.

Interviewer: Is this really common, among a lot of women in particular, that you see?

Dr. Gari: Yes, it’s very common. We have a lot of patients with fibromyalgia, and the way that we treat them is comprehensively, and that involves relaxation techniques, physical therapy. Sometimes we do these things called trigger point injections, and trigger points are actually like little muscle spasms that can develop in patients with fibromyalgia, throughout your body. It’s a pretty simple technique, we just go in there with a very small needle and break up these little trigger points. We also give them medications to help them relax, and we find that with that comprehensive approach, we can give them their life back.

Interviewer: Yeah, I was going to ask you, what kind of reactions are you getting from patients who you’re helping? Because I’m sure a lot of them, for a long time, they weren’t being diagnosed. And they kept saying, or people might have been saying, “Well, are you depressed?”, and they weren’t getting to the heart of what was wrong with them. So we mentioned physical, how it hurts, but how mentally it can be so hurtful, for so many people. So what are you finding from the people that you’re treating with this?

Dr. Gari: Sure, well one of the things that would happen the last…many years ago, the first thing that we tell them is that this pain is real.

Interviewer: And that’s half the battle for so many people, right?

Dr. Gari: Yes, this pain is real, and sometimes I tell patients that, and they begin to cry.

Interviewer: Yeah, because nobody has listened to them.

Dr. Gari: No, this pain is real, this is real pain. You’re having this pain, it’s not just in your head. You’re feeling this, but the good thing is we can help you with this. And that you’d be…it’s almost as if it’s like tons of weight off their shoulders, that somebody understands what they have and that we can do something about it.

Interviewer: Do you see gentlemen at all with fibromyalgia?

Dr. Gari: We do see men with fibromyalgia, not as common as women, but we treat them the same way. This happens in both, it’s not just unique to women, it also affects men.

Interviewer: So apart from finally having somebody listen to them, and saying “Yes, I’m validating that you’re feeling what you’re feeling,” how quickly can people start to feel some kind of relief?

Dr. Gari: I’ve had patients come into the office with significant pain, mostly from trigger points. We do the trigger point injections right in the office, and they come out a different person. You can just look at their face. I wish I could take a picture of their face before and after. So it can be immediate, but that’s just the immediate treatment of the trigger points. We then go more comprehensive with everything else and make it more long-term.

Interviewer: Well, I know this is really encouraging news for a lot of people that are watching right now because fibromyalgia does affect a lot of people, and they’re looking for help. Dr. Gari, thank you very much for joining us today. Florida Pain Relief Group even schedules same day appointments. Be sure to visit their website, floridapainreliefgroup.com, or give them a call right now 844-KICK-PAIN. Doctor, thank you again. We’ll be right back.